We have been learning about institutional prejudices as
sources of inequity and oppression, and that bias and prejudice are learned
behaviors. I would like to share with you some ongoing issues I have witnessed
regarding disability bias. I am a special education paraprofessional. I work
one on one with students who require it. Over the last few years, I have been
assigned to work with two students who were wheelchair users and also had some
communication issues. One student used an eye gaze computer to communicate as
well as basic head nodding for yes/no questions. The other student had a well
developed vocabulary but was somewhat difficult but not impossible to
understand. If you took the time and made the effort to listen to what she was
saying, you could understand her fairly easily. The bias I witnessed time and
time again came from adults within the school as well as other students, who
assumed that she couldn't speak and would direct all communication about her
over her head to me. Often these questions would be seeking the student's
opinion about something. At first, I would turn and ask her the question, and
then relay the answer, but then realized that this method was contributing to
the problem, not being the solution. I began directing everyone to ask the
student directly. These incidents really diminished equity in education for
these students because these students were denied quality, meaningful
interaction with other adults and peers. Furthermore, it disempowered the
students because the student was being spoken for more often than not, and
because it reinforced the notion that these students could not make their
thoughts and opinions known without teacher assistance. These incidents still
occur despite continued redirection (by me) to ask the student the question.
This saddens me and makes me very angry. It also makes my student very angry,
because she has stated more than once that she feels that she does not have any
friends because no one will listen to her. She says it also makes her angry
because she can talk! I agree with her, because it marginalizes her because she is slightly challenging to understand. I feel that if
people took the time to listen carefully to what she has to say, and then ask
her to clarify if they don't understand it all (she is happy to do so) it
empowers her to communicate her ideas, thoughts and beliefs. For incidents like
this to truly stop, because I am sure that they occur to other people living
with a disability, it would be necessary to educate people to address people
directly, regardless of their appearance, and to look to parents, caregivers,
teachers or other people working in an assistive capacity for answers only if
they do not receive a response from the person. It is also important to note
that some people require a slightly longer time than others to process the
question and formulate their response. Education that not everyone with a
disability has communication problems would also be helpful. It is also helpful
to keep in mind that with today's technological advances, some people may use
augmentative communication devices to assist them in their daily lives.
Devices may include but are not limited
to things like iPads or Tobii eye gaze computers. Generally, it comes down to basic common sense, and the golden rule "Treat others the way you would want to be treated". I doubt you would want someone ignoring you and talking about you over your head to your teacher or caregiver when you are perfectly capable of expressing yourself using voice, sign language, or technological assistance. It's just something to keep in mind when working with people with disabilities, and would truly help diminish incidences of ableism.
Your post was so thoughtful! I think that people with different abilities are often excluded as being whole complete people. I admit that I get flustered sometimes, not sure of how to appropriately interact. My sister is amazing at recognizing and treating people with disabilities as whole individuals. She never makes assumptions about their capabilities to communicate and never looks past them to the caregiver like you were describing. I agree that we need to continue to educate people on this issue. In the situation that you discussed I think that the other children should be encouraged to have an open discussion about how to include children that they are not naturally comfortable interacting with. Knowledge is power.
ReplyDeleteHi Celeste,
ReplyDeleteI understand what you are saying. Although my mother has no disabilities she will be turning 89 years old in November and is very verbal. But, she may not response as fast as she wants did, but she still communicate very well. However the problem I am having is when we go to the doctor the doctor or nurse turn and ask me questions about her. I then tell the doctor my mother can talk, and then I ask my mother to answer the question please. Moreover this is her same doctor since we move to Georgia. Therefore if it is other information that I think the doctor should know I voice my concerns then. But until she cannot communicate they will show her respect.
But with this being said I feel this is one of the discriminating factors that older people have when everyone takes for granted that their minds have left them or they no longer know how to communicate effectively just because they are older.
Great Blog Celeste!
I notice this too Edith, when I take my mother to the doctor. She has reverted to a childlike state in some ways, and the doctors seem to assume that she cannot speak for herself when she is perfectly capable of doing so. (She may not always tell the whole truth, which is why my sister, father or I usually go with her). I didn't think of it as ageism, but now that I take an extra moment, it definitely is! It's definitely something to be aware of to avoid perpetuating.
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